Friday, January 8, 2016

What's in the Telling? Understanding Social, Psychological & Clinical Aspects of HIV Disclosure

The course of HIV infection includes a parallel pathway of disclosure (Asudani, Corser, & Patel, ). Multiple types of HIV disclosure have been identified across a wide spectrum of HIV prevention and treatment cascade (Arnold, ; Arun, Singh, Lodha, & Kabra, ; Ateka, ; Bairan et al., ). They all need to be under the spotlight of academic research. HIV testing, often seen as an entry point to diagnosis and disease management, involves disclosure of risk behaviors and disclosure of partners on the part of the individual being tested and disclosure of test results on the part of the healthcare providers (Atuyambe et al., ; Bachanas et al., ; Bedell, van Lettow, & Landes, ). Onward disclosure of serostatus is then the complex behavior under consideration in most HIV disclosure research (Afifi & Afili,).

Disclosure, or self-disclosure, is a process in which personal (often private or confidential) information is verbally communicated from one person (i.e., the discloser) to another person (i.e., the target; Chelune,). HIV disclosure includes an array of behaviors associated with the practice in which HIV-infected persons disclose their HIV serostatus to their partners, family members, or friends; or when a child is informed of her/his own HIV status (Qiao, Li, & Stanton, ). Essentially, it is the process of moving from unawareness to knowledge, invariably a unidirectional, irrevocable act (Li, de Wit, Qiao, & Sherr,). Disclosure has been viewed as an integral component in the public health effort to reduce incident HIV infections and improve HIV treatment and care (Remis, ). In detail, much research has also been done in terms of factors enabling or hindering disclosure, correlates and predictors of disclosure, preparation for disclosure and consequences of disclosure (Jorjoran Shushtari, Sajjadi, Forouzan, Salimi, & Dejman,; Kumar, Waterman, Kumari, & Carter, ; Latkin et al., ; Lee, Bastos, Bertoni, Malta, & Kerrigan, ; Liamputtong & Haritavorn, ; Linda, ; Lyimo et al., ).

Existing research and theorizing suggest that HIV disclosure is not a single event but a process of gradual and selective delivery of information embedded in the context of a social relationship (Lesch et al., ; Moses & Tomlinson, ). A growing number of empirical studies have focused on the process of HIV disclosure, including decision-making, disclosure patterns, and post-disclosure adjustment. These elements are shaped by various social, psychological and clinical factors (Bott & Obermeyer, ; Letteney, Krauss, & Kaplan, ; Li et al., ). Studies have elaborated a cycle of how HIV disclosure has had complex, often reciprocal influences on behavioral, psychosocial, and clinical aspects of the lives of HIV-infected individuals (Butler et al., ; Carballo-Dieguez, Miner, Dolezal, Rosser, & Jacoby, ; Dageid, Govender, & Gordon, ; De Baets, Sifovo, Parsons, & Pazvakavambwa, ). Disclosure has also been found to be layered with different needs, demands, and ramifications of various forms of disclosure ranging from sexual partners, to close family members, to friends and social acquaintances, to children, to employers, and to employees (Eustace & Ilagan, ; Fesko, ). Conceptual frameworks need to provide understanding of the drivers and inhibitors of disclosure, on variations in the disclosure process and how these may (or may not) affect various physical or psychosocial outcomes (Chaudoir & Fisher, ; Chaudoir, Fisher, & Simoni, ; Qiao et al., ). Both intended and unintended consequences of disclosure need to be considered (Serovich, McDowell, & Grafsky, ; Shamu, Zarowsky, Shefer, Temmerman, & Abrahams, ). Active, coerced, and accidental disclosure may all have different effects on the behavior and mental health of all individuals concerned (Feigin, Sapir, Patinkin, & Turner, )...

Full article at:   http://goo.gl/fTNxQ6

By:  Xiaoming Li, a , * Shan Qiao, a John de Wit, b and Lorraine Sherr c
aDepartment of Health Promotion, Education, and Behavior, South Carolina SmartState Center for Healthcare Quality (CHQ), University of South Carolina Arnold School of Public Health, Columbia, SC, USA
bCenter for Social Research in Health, University of New South Wales, Sydney, New South Wales, Australia
cResearch Department of Infection & Population Health, University College London, London, UK
Contact Xiaoming Li ; Email: ude.cs.xobliam@gnimoaix








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