Showing posts with label Bereaved. Show all posts
Showing posts with label Bereaved. Show all posts

Saturday, December 19, 2015

‘We Do It to Keep Him Alive’: Bereaved Individuals’ Experiences of Online Suicide Memorials & Continuing Bonds

This paper presents draws on interviews with individuals who have experience of creating, maintaining and utilising Facebook sites in memory of a loved one who has died by suicide. We argue that Facebook enables the deceased to be an on-going active presence in the lives of the bereaved. We highlight the potential of the Internet (and Facebook in particular) as a new and emerging avenue for the continuation of online identities and continuing bonds. Our study offers unique insight into survivors’ experiences of engaging with the virtual presence of their deceased loved one: how mourners come and go online, how this evolves over time and how the online identity of the deceased evolves even after death. We discuss how Facebook provides new ways for people to experience and negotiate death by suicide and to memorialise the deceased, highlighting the positive impact of this for survivors’ mental health. Finally, we describe the creation of tension amongst those who manage their grief in different ways.

…Our participants highlighted tensions between public and private expressions of grief and emphasised a growing sense of uneasiness created by these new forms of memorialising/mourning between some who want those online connections and others who wish to disengage with the possibilities that the online environment offers. For example, those who wish to disengage may be motivated by a desire for private grief, and the fact that forgetting can allow wounds to heal. This process is thwarted by pervasive digital memory (Mayer-Schonberger, ), and constant reminders on Facebook, and is experienced as painful as in Lucinda’s son’s case: ‘and it’s like a pain, it’s a painful memory’. Those who wish to engage with the online environment may be motivated by a desire for connectedness and lament the loss of public expressions (or ‘forgetting’) as Samantha does (‘have people forgotten … don’t people care … I feel very alone’). The pain of grief is here intensified by the loss of watching others withdraw from public to more private expressions of grief, or else ‘move on’ with their lives. In both instances, the retreat from a public sharing of grief served to isolate these participants, further compounding their grief experience.

For Walter () potential for conflict can also arise as different ways of mourning become more apparent to others, but not necessarily more understood. In this extract, Philip expresses a need to mourn the death of his son with others, and honour him in a shared social space online: ‘I’ll never take it down …. I’ve got sixty-seven people in his life who I can share my grief with … and they all understand where I’m coming from.’ Others in his family did not. He struggled to understand this: ‘I think [they] grieve in a different way …. I can’t really understand how [they] can carry on as if nothing has ever happened.’

The Internet and Facebook in particular can therefore serve to widen the range of practices through which people grieve and choose to ‘remember’ those who have died by suicide. Briany explained how her grief was eased by Facebook demonstrating the enhanced affordances of online life for ‘keeping the dead alive’. At the same time, she acknowledges the opposite effect that reminders and memories on Facebook has had on her parent: ‘Ironically … my mum, she won’t go on the page because of that, she can’t bear to look at a photograph of him … so there’s the flipside’.

These tensions between those who refuse to forget and those with a desire to forget illustrate problems presented by Facebook. However, Rosenblatt’s () work is helpful in reminding us not to confuse forgetting with being unable to confront pain. Thus, the fact that ‘she can’t bear to look at a photograph of him’ may indicate that she simply cannot bear the pain of something as direct as Facebook: perhaps she is at a point where the pain is still too raw for images to offer comfort and that the Facebook postself is too confronting. Grief itself is not a constant state and is often individually negotiated, coming in surges which are typically set off by reminders, especially reminders of the loss which have not yet been neutralised or redefined (Rosenblatt, ). This is more likely when Facebook expands the spatial, temporal and social reach of death (Brubaker et al., ). This is especially true of suicide deaths where the process of making sense of the death is more complex (Bell et al., ; Jordan, ) and therefore more difficult to ‘neutralise’ and ‘redefine’…

Full article at:  http://goo.gl/DTcH2G

By:   Jo Bell, a , * Louis Bailey, b and David Kennedy c
aSchool of Social Sciences, The University of Hull, Hull, UK
bHull York Medical School, The University of Hull, Hull, UK
cDepartment of English, The University of Hull, Hull, UK
Correspondence: E-mail: ku.ca.lluh@lleb.j
 

Friday, October 2, 2015

Compassion or Stigma? How Adults Bereaved by Alcohol or Drugs Experience Services

How to promote compassionate care within public services is a concern in several countries; specifically, some British healthcare scandals highlight poor care for service users who may readily be stigmatised as 'other'. The article therefore aims to understand better the relationship between stigma and compassion. 

As people bereaved by a drug- or alcohol-related death often experience stigma, the article draws on findings from a major British study, conducted during 2012-2015 by the authors, of people bereaved in this way, in order to see how service provision can be improved. One hundred and six bereaved family members were interviewed in depth about their experiences of loss and support. Thematic analysis developed theoretical understandings of participants' lived experiences. This article analyses our data on how bereaved people experienced stigma and kindness from practitioners of all kinds. 

We found that stigma can be mitigated by small acts of kindness from those encountered after the death. Stigma entails stereotyping, othering and disgust, each of which has emotional and cognitive aspects; kindness entails identification and fellow feeling; professionalism has classically entailed emotional detachment, but interviewees found cold professionalism as disturbing as explicit disgust. 

Drawing on theories concerning the end of life, bereavement and emotional labour, the article analyses the relationship between stigma, kindness and professionalism, and identifies some strategies to counter stigmatisation and foster compassion.

Via:  http://ht.ly/SXFIS Full article at: http://ht.ly/SXFQC

  • 1Centre for Death & Society, Social & Policy Sciences, University of Bath, Bath, UK.
  • 2Institute for Social Marketing, University of Stirling, Stirling, UK.
  • 3Psychology, University of Bath, Bath, UK.

Monday, September 14, 2015

Predictors of Mental Health Resilience in Children Who Have Been Parentally Bereaved by AIDS in Urban South Africa

Children parentally bereaved by AIDS experience high rates of mental health problems. However, there is considerable variability in outcomes, and some show no mental health problems even when followed over time. Primary aims were to identify predictors of resilient adaptation at child, family and community levels within a group of AIDS-orphaned children, and to consider their cumulative influence. A secondary aim was to test whether predictors were of particular influence among children orphaned by AIDS relative to non-orphaned and other-orphaned children. 

AIDS-orphaned (n = 290), other-orphaned (n = 163) and non-orphaned (n = 202) adolescents living in informal settlements in Cape Town, South Africa were assessed on two occasions 4 years apart (mean age 13.5 years at Time 1, range = 10-19 years). Self-report mental health screens were used to operationalise resilience in AIDS-orphaned children as the absence of clinical-range symptoms of PTSD, anxiety, depression, conduct problems, and suicidality. 

A quarter of AIDS-orphaned children (24 %) showed no evidence of mental health problems at either wave. Child physical health, better caregiving quality, food security, better peer relationship quality, and lower exposure to community violence, bullying or stigma at baseline predicted sustained resilience. 

There were cumulative influences across predictors. Associations with mental health showed little variation by child age or gender, or between orphaned and non-orphaned children. Mental health resilience is associated with multiple processes across child, family and community levels of influence. Caution is needed in making causal inferences.

Via: http://ht.ly/Sdsu7 

By: Collishaw S1Gardner FLawrence Aber JCluver L.
1Child and Adolescent Psychiatry, Institute of Psychological Medicine and Clinical Neurosciences, School of Medicine, Cardiff University, Hadyn Ellis Building, Cardiff, CF24 4HQ, UK