This article considers the
potential in using nationwide registers to study harm to others from substance
use and abuse. The advantages of using registry data include the opportunity to
include the data on the entire population nationwide and continuously updated
longitudinal datasets; they allow for studying small subpopulations and have
little missing data. Personal identification numbers and family numbers enable
linkage of data from different registers. Such datasets can include extensive
information on individual and family levels. In this article, we provide an
introduction to nationwide registers and explain how they can be applied to
investigate two types of third-party harms: harm to children and harm to
partners/spouses from substance use and abuse in parents and partners/spouses.
Finally, we discuss challenges, benefits, and ethical considerations regarding
the use of such data.
Substance use and abuse contribute
not only to harm to the user but also to third parties. Current estimates of
the prevalence and extent of harm to others from substance use and abuse may be
unreliable partly because persons with substance use problems are less likely
to respond to surveys.1 Nationwide
registers provide a unique opportunity to study harm to others from substance
use and abuse that can contribute to more reliable estimates of the prevalence
and extent of such harms. Registry data enable studying the entire populations
for long periods of time; they often include large samples and are therefore
well suited to study small patient groups and rare outcomes. Despite these advantages,
registry data are rarely used to study harm to others from substance use and
abuse. We aim to provide information that make more researchers aware of the
possibilities with registry data, alone or in combination with survey data, to
answer research questions on this topic in both clinical and general
populations. We describe relevant registers and how they can be applied to
investigate two types of third-party harm: (1) harm to children from in utero exposure
to substances2,3 and from
growing up with parents who use or abuse legal and/or illegal substances4,5 and (2)
harm to spouses/partners. We also discuss challenges, benefits, and ethical
considerations regarding the use of such data. It is beyond the scope of this
article to cover how all registers available across countries can be used to
study harm to others from substance use and abuse. Instead, we use the
Norwegian setting as an example of how nationwide registers can be applied to
address such research questions. However, we also refer to examples from other
countries….
Full article at: http://goo.gl/CTwAKp
- 1The Norwegian Institute of Alcohol and Drug Research (SIRUS), Oslo, Norway.
- 2Norwegian Centre for Addiction Research, Oslo, Norway.
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