The burden of HIV affects not
only HIV-infected patients but also their families and caregivers. It is also
known that family support is crucial for people living with HIV.
A qualitative
study was conducted to explore the life experiences, within the family context,
of perinatally HIV-infected (pHIV-I) youth in Puerto Rico. Twenty in-depth
interviews were performed and audio-recorded. Within the family context, study
participants experienced acceptance, love and support but also stigma and
discrimination. They reported that family is an essential component in their
lives and treatment. Losing one or both parents at a young age was considered
more difficult than having HIV. Most participants who lost their parents lived
with other family members. This was a challenging situation for both pHIV-I
youth and their caregivers. Participants described their healthcare providers
as part of their families and would like to keep in touch as they transition to
adult care. Despite the challenges, participants expressed a desire to have
children.
Services targeted to this population should stress social support,
incorporate family members into the medical process, provide special guidance
and support while transitioning to adult care, and provide them with the latest
information regarding HIV and reproductive options.
Below: Patterns and connections among themes that emerge during phenomenological analysis
Full article at: http://goo.gl/9K8PJt
By:
1Department
of Sociobehavioral and Administrative Pharmacy, Nova Southeastern University,
00926 San Juan, Puerto Rico. gsilvasuar@nova.edu.
2Department
of Health Promotion and Disease Prevention, Florida International University,
Miami, FL 33199, USA. ebastida@fiu.edu.
3Department
of Sociobehavioral and Administrative Pharmacy, Nova Southeastern University,
33314, Fort Lauderdale, FL & Department of Social Science, School of
Public Health, University of Puerto Rico, Medical Sciences Campus, 00921 San
Juan, Puerto Rico. rabionet@nova.edu.
4Department
of Health Promotion and Disease Prevention, Florida International University,
Miami, FL 33199, USA. cbecksag@fiu.edu.
5Department
of Pediatrics, University of Puerto Rico, Medical Sciences Campus, 00921 San Juan,
Puerto Rico. irma.febo2@upr.edu.
6Department
of Obstetrics and Gynecology, University of Puerto Rico, Medical Sciences
Campus, 00921 San Juan, Puerto Rico. carmen.zorrilla@upr.edu.
Int J Environ Res Public
Health. 2015 Dec 22;13(1). pii: E7. doi:
10.3390/ijerph13010007.
More at: https://twitter.com/hiv
insight
No comments:
Post a Comment